inspired

Why My Baby's Blindness Diagnosis Inspired Me to Keep Working and Start a Business

Why My Baby’s Blindness Diagnosis Inspired Me to Keep Working and Start a Business

Editor’s note: In 2021, Leslie Danford launched her business while pregnant with her fourth child. After failing his newborn hearing screening, the Danford infant was later diagnosed with Usher Syndrome Type 1B, a rare genetic condition that impairs hearing, balance and will likely lead to loss of vision in childhood. Although there is no cure …

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Cameron and Hannah Bell, with their son Samuel, who has a rare genetic disorder called Trisomy 9p. Cameron says he was inspired to write a book that describes the perspective of a person who, like Samuel, has a life-changing genetic disorder.

Utah father writes book inspired by son with rare genetic condition

Cameron and Hannah Bell, with their son Samuel, who has a rare genetic condition called trisomy 9p. Cameron says he was inspired to write a book that describes the perspective of someone who, like Samuel, has a life-altering genetic condition. (Photo by Maegan Stallings) Estimated reading time: 4-5 minutes DRAPER — When Cameron Bell was …

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